Jason and Justin Leider of Elmwood Park, NJ have been diagnosed with a rare and fatal genetic disease. Hunter Syndrome affects less than 350 children in the U.S. sadly enough the devastating effects of the disease will take control of their little lives resulting in their passing between 10 and 15 years. The disease eats away all of organs, muscle, joints, and brain, leaving children unable to walk, talk, or eat. Every week is spent receiving 4 – 5 hours of medication to help the organs from failing too soon. Children and parents have to go to countless doctor appointments, as well as have to travel to NC every 3 months for medications and supervision.
BikerLeather.com has been in contacted by Jim from Riders For A Rare Disease Bike Run and asked us to be vendors at the event. BikerLeather.com has agreed to be the vendor for the bike run, so if you are in the area of 33 W Passaic St, Rochelle Park, NJ come and visit us, and do your part by donating.
The event takes place on Saturday October 12th, 2013 but if the rain decides to ruin the day, then the event is moved to Sunday October 13th, 2013. The start of the event is at Apple Bees Restaurant 186 Passaic Street, Garfield NJ, and the finish is at Knights of Columbus 33 W.Passaic Street, Rochelle Park, NJ.
Who are the sponsors of the event? Applebees, Hooters, Firehouse, live music by Band, Children’s Entertainment, and more.
Registration starts at 8:30 a.m.
Ride leaves at 11:30 a.m.
BBQ Bash is open to the public and starts at 12:00 p.m.
Event Registration – Applebees Restaurant 186 Passaic Street, Garfield, NJ (Start of the Ride)
Event Finish – Knights of Columbus 33 W. Passaic Street, Rochelle Park, NJ (End of the Ride)
BikerLeather.com is attending this event and so should you! Come out and support the event along with BikerLeather.com crew!
Learn more about Jason & Justin’s Journey X2